myMedidata Registries

Video transcript: Clinical trials are vital to creating innovative medicines that save lives, and patients play a crucial role in making these trials successful. Patients are the true heroes, selflessly dedicating their time and energy to participate in clinical trials, all while managing their own health challenges and juggling the demands of everyday life. If these challenges weren't enough to deter them from participating, consider this: Patients are often unaware of clinical trials as a viable care option, restricting their health care choices. Moreover, the process of finding an appropriate trial involves navigating various resources, causing confusion about how to enroll or who to contact. And in the event that a patient manages to participate, once the trial is over, they're often left in the dark about outcomes, uncertain of its impact on their medical care and disconnected from future trials. This lack of information leaves them uncertain, missing out on opportunities to improve their health and wondering whether it was worth their time. For sponsors of the trial, all of these challenges impact patient recruitment and retention, increasing costs and reducing the chance of clinical trial success. In response, My Metadata Registries was developed by patients, for patients to address these challenges, engaging patients before they've considered joining a trial and supporting them after they've participated. Here's how it works. Allison is directed to a My Metadata Registry website by her healthcare provider, patient advocacy group, or through social media advertising. Here, she learns about the benefits of joining the registry and discovers specific study opportunities presented in easy to understand language and with useful information to help her decide if the study is right for her. By creating a MyMetadata lifetime account, she gains access to all clinical trial support, equipping her with the necessary tools to successfully complete her trials. After creating her account, she completes custom eligibility assessments for one or more trials. If she meets the criteria, she's referred to a trial site for further screening and enrollment. After successfully completing a trial, Allison is informed of trial outcomes and notified of future study opportunities. She's now empowered in her healthcare journey, bringing information back to her family and caregivers to decide on next steps. MyMetadataRegistries empowers patients with expanded health care choices, presenting clinical trial opportunities as an option. This benefits both patients and sponsors, mitigating recruitment and retention challenges by creating a community of empowered, research ready patients. Together, we continue to celebrate patients as the true heroes in advancing medical knowledge and improving patient care. Learn more at mymetadata dot com slash registry.