Patient Insights Board Member
Jamie Troil Goldfarb is alive today because a phase I clinical trial for metastatic melanoma saved her life. When her diagnosing oncologist told her he would do everything within his power to "buy her six more months" with her then newborn, she knew that joining a clinical trial represented her best chance for survival. A passionate advocate for clinical trials, Jamie works through numerous advocacy groups including the Melanoma Research Foundation and the Melanoma Research Alliance (for which Jamie serves as a moderator for their online patient forum); regularly speaks at industry conference about the importance of getting clinical trial information directly into the hands of the patients who so desperately need it; is a Research Advocate for the National Cancer Institute; serves on the grant review board for the Congressionally Directed Medical Research Program; and works one-on-one with people with cancer to help them understand and navigate their treatment options.
Outside of her advocacy initiatives, Jamie is the Director of Trial Strategy for a global patient recruitment company and has been working in public health communications for more than 20 years - 12 of which have focused on clinical trial patient recruitment. Through her work in the industry and her personal experience as a clinical trial participant and cancer survivor, Jamie brings unique perspective around the needs of patients, sites, CROs, and sponsors.
Launched by Medidata in 2022 with a posthumous award to Linnea, Jamie is the first recipient of the Linnea Olson Advocate of the Year award in 2023.