Jamie Tyrone

Jamie Tyrone is an author, Registered Nurse and retired hospital marketing executive. Only two percent of the population has her ApoE 4/4 genetic status that puts her at one of the highest genetic risks for succumbing to Alzheimer’s disease. Motivated by her strong family history of AD, she became a research participant, is the chairperson for the Stakeholder Committee for the Advisory Group on Risk Education for Dementia (AGREEED - originally convened by the NIA/NIH), and a dedicated advocate for the specific needs of those with her genetic status to increase funding and research participation as a board member of the ApoE4 Alzheimer’s Alliance. 

Jamie envisions a world without this cruel disease that destroys memories and often shatters families. She is a founding member of Women Against Alzheimer’s and has been honored with a place on Maria Shriver’s “Big Wall of Empowerment” recognizing those who are architects of change. She was honored to be a member of the advisory committee on the “Return of Individual Results” with the Multi-Regional Center for Clinical Trials with (MRCT) with Brigham and Harvard by defining and creating ethical, actionable, and practical solutions for global clinical trials. She has co-authored several published papers on returning individual results to research participants and implementing the use of blood-based biomarkers in the primary care setting with the CEOi initiative. 

Jamie’s family history with Alzheimer’s disease is documented in the CNN award-winning film Filling the Blank, produced by Filipe Barrel. Her story was also highlighted in the BBC documentary Curing Alzheimer’s. Her personal experience of living with this genetic status has been a feature story in the New York Times, a cover story in the Washington Post, featured in the daily newspaper San Diego Union Tribune, and included in a PBS Newshour segment discussing how Alzheimer’s disease researchers seek better prevention with early detection. Her book Fighting For My Life—How to Thrive in the Shadow of Alzheimer’s was released by HarperCollins May 7th, 2019.