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EIU Perspectives: State of patient centricity 2020

EIU Perspectives:

State of Patient Centricity 2020: Advancing From Patient-First Intentions to True Co-Creation

This envelope-pushing Economist Intelligence Unit report, sponsored by Medidata, explores how achieving patient centricity in clinical trials needs to evolve beyond patient engagement initiatives to patient co-creation and how these mutually-beneficial partnerships will transform both the future of research and development and the healthcare industry at-large. With a foreword from Alicia Staley, Medidata’s Senior Director of Patient Engagement, this report draws from a series of interviews with leading experts below from pharmaceutical companies, research organisations and patient advocacy groups along with comprehensive desk research. 

  • Jennifer Byrne: CEO, Javara
  • Luther Clark: deputy chief patient officer, Merck
  • Ken Getz: deputy director and research professor, Tufts Center for the Study of Drug Development
  • Jeff Kasher: president, Patient’s Can’t Wait
  • Emily Kramer-Golinkoff: cystic fibrosis patient and co-founder of Emily’s Entourage
  • Craig Lipset: founder of Clinical Innovation Partners and former head of clinical innovation, Pfizer
  • Jan Nissen: vice-president, US Regional Customer Operations, Vaccines, Merck
  • Jessica Scott: head of R&D Patient Engagement, Takeda
  • TJ Sharpe: patient advocate and metastatic melanoma survivor

Table of Contents: 

  • About the research
  • Foreword by Medidata
  • Executive summary
  • Chapter 1: The tribulations of clinical trials
  • Chapter 2: The essence of patient centricity and how it can help
  • Chapter 3: Progress on the road to true co-creation
  • Chapter 4: Patient-centricity starts with deep, collaborative relationships that involve the entire organisation
  • Chapter 5: Implement trials with patients, not just with them in mind
  • Chapter 6: Getting full value from the plethora of new IT tools will require the restructuring of trials around patients
  • Chapter 7: Run trials for the patient’s benefit as well as the sponsor’s
  • Conclusion: The patient is ready to see you now


State of Patient Centricity 2020: Advancing From Patient-First Intentions to True Co-Creation