Improving Access to Clinical Trials for Rare Disease Patients Through Registries


Improving Access to Clinical Trials for Rare Disease Patients Through Registries

New medicines are made possible by participation in clinical trials and patient recruitment is often the rate limiting step in bringing new therapies to market. Research has shown that patients are likely to participate when they are aware of clinical trial opportunities and are empowered with knowledge to optimize their engagement experiences. In rare diseases, these problems are further amplified. In this session, learn how Medidata is improving access to and optimizing experiences in clinical trials through myMedidata.

In this webinar, you will learn:

  1. Introducing registries as a tool for rare disease patients
  2. Using registries to help rare disease patients become empowered, educated, and engaged regarding clinical trial opportunities

Speaker Bio:

Kelly McKee, Senior Director of Patient Registries and Recruitment, Medidata, a Dassault Systèmes company

Kelly McKee recently joined Medidata as the Sr. Director of Patient Registries and Recruitment with 20 years of experience in clinical trial operations, patient recruitment and innovation.  She is a proven clinical trial leader and trailblazer in operationalizing global patient-focused solutions across organizations including innovations in clinical trial awareness, access, and improvements in patient experiences.  Kelly is passionate about celebrating the role that clinical trial participants bring in making new medicines and vaccines possible and was named one of PharmaVoice’s  100 Most Inspiring Leaders in 2020, Centerwatch’s Top 20 Innovators of 2018, and PharmaTimes’ Clinical Researcher of the Year, Clinical Research Teams, in 2012.